I have searched out many websites concerning CDH (Cherubs is one) and they aren't updated regularly and haven't been for years.  I have paid good money to have other parents of CDH children "matched' up with me, and haven't gotten anything of value.

 

I just think that our precious lambs deserve to grow up knowing that there are others like them, and I would LOVE to chat with other parents who have "been there" or help parents who are going throgh what we have gone through.

 

Please pass on this website, email me, whatever makes you most comfortable.

 

For those parents whose child hasn't been born yet, this can be a terrifying and stressful time because there is so much "unknown" and varying websites out there.  I am not a medical expert, but we researched a lot, and Theresa has pretty much had about everything that CDH babies can get (ECMO, fundoplication, g-button, etc.) so I will listen to you vent, answer questions to the best of my ability, relate our story, whatever I can do.

 

If you live in the Houston area, I would LOVE to start a local play group for our children.  Since they can't be in closed spaces with lots of children because of the germs, and the chance of them catching respiratory illnesses, then I think it would be great to have some outdoor meetings, or play in locations we know are relatively "clean."  This would be great for the kids and the parents as well.